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Replies to "@mguspixi25 You're absolutely right. There is research that indicates most people do not progress further, but..."
I was told by my doctor that the disease WILL progress in everyone at some point, unless they die of something else before the MGUS progresses to smoldering or MM. He says it could be 15 - 20 years from the first MGUS diagnosis until it progresses, but it will progress. I am relatively young for the MGUS diagnosis, as my doctor told me that most people are diagnosed in their 70's and I am in my 50's. He does my bloodwork every 3 months and my next appointment is about 3 weeks away. I'm curious as to what he will say this time, and I've recently been diagnosed as also having Addison's disease. Just some info...
Yes, and unfortunately there isn’t an accurate (enough for me to rely on anyway) tool to calculate that change, which includes variables like what you’ve described.
I have none of the characteristics and yet I’m high risk MGRS (high risk of conversion to SMM) when taking into account only the current changes - otherwise I was intermediate-high, which still doesn’t have the rate of change/progression that I’m seeing.
Well, I hope you don’t ‘overachieve’ any more regarding MM Ginger, because you’re well needed by many for your upbeat approach and uplifting perspective 🌺