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@1995victoria

I was diagnosed with ET Jak2 in 2021, my platelets went over 1,000, with HU and baby aspirin, it is down in normal range. But wanted to ask the group, about Bone Pain. I had bone pain in my toes for 3 years before diagnosis. Since diagnosis I still have bone pain in my toes, but also in my shins. I don't have bone pain or joint pain any where else. Just wondering about your experience with this symptom??????

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Replies to "I was diagnosed with ET Jak2 in 2021, my platelets went over 1,000, with HU and..."

I have ET with the JAK2 mutation as well as MDS.

I am taking 500mg of HU with baby aspirin as well.

The toes on my right foot are really aching! I don't know if it's the ET or arthritis!