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DiscussionAnyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
Replies to "Hello...I have neuropathy in both feet. And severe nerve damage in one finger that spreading. I..."
@liash I have neuropathy and cant take CBD oil but I do use a cream Topricin its about 25.00 I like it as it stops the tingling and gabapentin this the Dr prescribes. They both give you relieve
Hi, @lisash
I have small fiber idiopathic peripheral neuropathy, and the pain is primarily in my feet. It started out years ago with tingling in my feet and legs, then it became pins and needles, and for maybe 5 years I've had burning pain, starting in the balls of my feet, spreading to my toes, and now it's in my ankles.
I tried every medication for neuropathy, including Gabapentin. My siblings have neuropathy, too, and Gabapentin has treated it for them, but not for me. It's a common medication for peripheral neuropathy pain, and is a prescription medication.
My primary care doctor had me try the meds usually used for pn. Then I started seeing a neurologist, who prescribed everything in his arsenal. From there I went to a pain specialist, who has even more meds. I think that what I'm taking is about the end of his list.
Two years ago I had a Burst DR spinal cord stimulator implant, and I had immediate relief from the pain, like 75% improvement. It felt wonderful!
After a year, the stimulator started being less helpful, so I have been seeing the man who is a rep for the company which makes it. I need to see him every 3 months, and he adjusts the settings on the stimulator. It takes care of some of the pain, but I have to take medications for the rest of the pain. As I said, I tried everything the doctors could think of before getting the stimulator implant. I've been taking morphine sulfate contin for several years and it takes the edge off the pain. Two months ago the pain specialist prescribed Imipramine, and it's really helped. If I do much walking, my feet hurt, and they hurt every night when I lie down in bed. I use lidocaine cream on my feet when they really hurt, and I found a non prescription cream on Amazon called Uber Numb, that numbs my feet for a couple of hours while I'm going to sleep. The prescription lidocaine cream is outrageously expensive, but the Uber Numb only cost $16.
Do you have a doctor who has done tests to diagnose the neuropathy? I think Gabapentin is one of the first medications that is prescribed. I hope you find help soon.
I've never tried CBD oil, but many people swear by it. Chris at @artscaping has been a good resource here. You might talk with her about it.
God bless you and keep you.
Jim