← Return to Small Fiber Neuropathy

Discussion

Small Fiber Neuropathy

Neuropathy | Last Active: May 5 3:07pm | Replies (85)
Comment receiving replies
@budjo611

I’ve tried them all. Lyrica, gabapentin 3600 mg a day. Cymbalta combined with both. Gabapentin and Lyrica together. Nothing, I mean NOTHING works well. I was diagnosed with SFN 3 years ago. It’s obvious, at least in my case, nothing works well.
Sorry to be so negative, but it seems the medical field is oblivious to methods of treatment. There are clinical trials ongoing, and I’m volunteering my body to one. But it doesn’t start till January. Best I can say is don’t give up. You’re not alone. It’s not in your mind. It’s all too real, and it’s truly life altering!!!!!
Hope is the only thing that keeps me going..
HANG ON TO HOPE!!!!!
BOTH HANDS!!!!!

Jump to this post

Replies to "I’ve tried them all. Lyrica, gabapentin 3600 mg a day. Cymbalta combined with both. Gabapentin and..."
sfnmcashatsebv | @sfnmcashatsebv | Sep 17, 2023

nothing has helped my SFN pain either. trileptal helps w burning in finger tips, but notwhere else. The pain is relentless and affecting my heart rate, it is low. A dr told me to find cause of SFN to stop it. I dont know the cause , suspected by dr i have a virus. I never test positive for covid active infection, only test positive on blood tested antibodies. I dont know what the virus is that is causing SFN. I dont have diabetes, never alcohol drinker. Getting tingling in my face

VIEW AND REPLY