Drowning

Posted by buzz23 @buzz23, Sep 6, 2023

I've been sick my whole life, with increasing severity over time. I was only started on treatment about 5 years ago. I have exhausted my currently available treatment options, and I am still not getting better. I have had a generous number of strokes, a pathological fracture, have osteoporosis, keep having spontaneous bleeds while also throwing thrombi, have AVNs on both my hip bones, a struggling heart, peptic ulcers, and my white blood cells and haemoglobin are often low. As though the lupus isn't enough, I also have a very petty case of asthma, and allergies from hell.
I am currently in grad school but failing to study or work on my research because I am always exhausted. I am extremely fatigued, in pain, lightheaded, and can't sleep to save my life. My therapist insisted that I go out more to meet people and live (as does my mother) but I technically live in my bed, how do you meet people like that? Even if I met people, how do you have a relationship when you are confined to the house so much? Who has the patience to have plans repeatedly cancelled?
There is too much (with the lupus) and too little (with school) happening, and I am drowning in it.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@harley22

Thanks for answering my questions.

Jump to this post

My pleasure. I love questions, both asking and answering them.

REPLY
In reply to @harley22 "Thanks a lot!" + (show)
@harley22

Thanks a lot!

Jump to this post

You are most welcome.
You've got this 💪💪💪

REPLY
In reply to @harley22 "Thanks a lot!" + (show)
@harley22

Thanks a lot!

Jump to this post

Hi. How are you doing?
How did the rituximab go?

REPLY

Having it on Tuesday next week.

REPLY
Please sign in or register to post a reply.