I hope all is stable when you get the results 🌺
However, if not, there’ll be a plan - good docs know what to do. And ask questions like: What now? How do we proceed? What should I expect? What are the tests needed to confirm this? Etc 🙂
I’ve learned to pay attention to indicators like kidney function changes, peripheral neuropathy, pins and needles, fatigue, the amount of night sweat, bone pain, and swelling around my eyes/face, hands and feet. When all this starts getting worse, and doesn’t get better (say if it’s just because I’ve had to push myself or have had extra stress), I know things are changing, and I let the docs know (not that they bother with a response here in the public system). I have a chronic infection (low immunity), however the last 2 antibiotics caused aseptic meningitis (I couldn’t see and my brain hurt a lot), and ventricular ectopic issues (heart rate around 32-38 bpm), so at the moment the highest risk to health is an unchecked infection (Gp will not prescribe any antibiotics as she is worried about her liability insurance).
Having mgrs with a near doubling of M proteins since last (4 months apart), I still am not close to multiple myeloma, only smouldering - and nothing in terms of treatment regime changes here between SMM and MGRS, so whether I have MGRS or SMM is a moot point due to zero change in intervention approach.
If anything changes in your numbers, you’ve always got people to talk to here if you’re worried.
In terms of stressing, my approach is to put it into context of what else I have to do/deal with (work, function, etc), and it kind of melts into the background.
The only little concern I have is an upcoming knee surgery to address the broken prosthetic (I had a bad fall and damaged the knee replacement), which has been broken since January (the public system is great at long term torture hehe), and the recent permanent loss of some kidney function when it comes to the drugs used in surgery/post op. considering the complications now encountered with antibiotics (which will be needed due to low immunity - kidney function greatly impacts how some drugs perform).
Anyway, that’s a worry for another day, and I’ll do more research on how best to manage (including what I can find on the adjusted doses of all the meds expected to be used) and have a discussion with the anaesthesiologist beforehand to make sure they don’t inadvertently jab me with something contraindicated.
If your worried, post your before and after numbers, if you’d like to 🙂🌺