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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)
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@rosy33

Hi John,
I read your message and I really want to believe. I've wasted so much time and energy trying all the different programs. The latest is with my doctor for daily vitamin packets which turned out to be something I can't use because of the high amount of B6 in the multi. All together that farce cost me a total of $600, $400 for the office visit and $200 for the vitamins that I can't use. I just get so that I find it hard to trust people anymore. I have idiopathic PIN for 20 years and have not been on any prescription meds for the past 10 years. I'm trying to research a way to help with healthier nutrition and vitamins because I really believe it starts in the gut. I plan to use the vitamin packets I have left sans the B6. I will order the Protocol once I do that. Thank you for your message and I hope you have a happy weekend. 🙂

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Replies to "Hi John, I read your message and I really want to believe. I've wasted so much..."
John, Volunteer Mentor | @johnbishop | Nov 1, 2019

Hi Rosy,
I certainly can understand how you feel and what you have been through. I also have idiopathic small fiber PN and have had it for over 20+ years only bothering to get it diagnosed in 2016 because of the numbness seemed to be spreading faster. I don't have pain so have not needed medications but have spent a lot of money on many things that have not helped. What got me started looking at nutrition as the answer to at least slow or stop the progression of the numbness was a book by Dr. Terry Wahls - The Wahls Protocol. She has an amazing story that you can read here: https://terrywahls.com/about/about-terry-wahls/.

Full disclosure ☺ -- The group is working on their own product to be available sometime in 2020. This came about because many of us really have a problem taking so many pills - 22/daily. The new product will combine some of the supplements into about half of the number of pills which hopefully will make it better and the cost should be about the same - around $6/day.

I honestly don't know if the protocol will work for you even though it has helped myself and many members of the group. It is definitely worth a try if nothing has helped you in the past. I don't believe it's an overnight thing where you start taking the supplements and the next day your symptoms are gone. I think it does take awhile and you have to stick with it. I didn't see any difference until after 2 months on the protocol when my numbness seemed to decrease. I haven't had any progress since then but it also hasn't gotten any worse for me which is what the neurologist told me would continue to happen.

Hoping you have a great weekend also. ☺

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