Connect
← Return to Thrombocythemia and need neck surgery: Will surgery make it worse?
Discussion
Thrombocythemia and need neck surgery: Will surgery make it worse?
Blood Cancers & Disorders | Last Active: May 26 9:01pm | Replies (53)Comment receiving replies
I’m a 71 yo female in good health. My count was initially in the 900s by the time I was tested and diagnosed. Prescribed 500mg/day. I got a second opinion. We dropped dosage to every other day. ~45 days later my numbers came down to about 800. I’ll have another reading ~45 days later. Side effects: hot flashes 🙁 again) and I have noticed itching on forearms—tubing alcohol fixes it.
Replies to "I’m a 71 yo female in good health. My count was initially in the 900s by..."
Connect
A good primary physician would refer you to a hematologist to follow up the rest of your life. This is a silent killer that is easy and simple to manage. If he didn't have you tested for the Jak2 mutation, I would get a new doctor. Read up on the Myeloproliferative Blood Disorders and get to know this condition so you can live a long normal life. Personally, I would not have lowered the dosage without testing for the Jak2 mutation and getting the platelet count under 400. My doctor saw me once a week until it was 400. 15 years later i'm seen twice a week for intravenous immune support and CBC every other week. I'm 70, don't look a day over 45. Out of nowhere my blood will become unstable where I'm admitted in the hospital until stabilized.