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Functional Tremor

Parkinson's Disease | Last Active: Sep 15, 2023 | Replies (9)

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@tedalmon

Hi, I too have a functional tremor in my right/dominant hand and disabilities similar to your husband's, to which i could add a few more, most notably my primary hobby, golf, or certain aspects of it like putting.

Here are some possible solutions I have been watching and conferring with my care team about:
DBS. In your husband's case this was only done once, but it can be performed on both sides to target bilateral symptoms. I assume in his case this was ruled out for some reason?

High intensity focused ultrasound, or HIFU. This relatively new procedure is being aggressively promoted by the manufacturer, Insightec so you can learn all about it on line.

And finally, the "Parkinson's Glove" a very interesting device currently in early clinical trials, I believe at Stanford. This would be the least invasive of all if proven effective. There is a remarkable video on line showing truly amazing results in a single patient. It was dramatic enough, if unscientific, to encourage me to wait to learn more about it, which so far has proven difficult.

Good luck to you and your husband in this quest, and please post anything else you learn.

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Replies to "Hi, I too have a functional tremor in my right/dominant hand and disabilities similar to your..."

I found this video that explained some of Stanford's work: https://www.youtube.com/watch?v=vlqpr-Projw. It is very scientific but I am happy I watched the whole thing. Thank you @tedalmon!

Hi, thank you for commenting. Sounds very similar to my husband. His right hand (primary hand) is the one with functional tremor and golf is his love and hobby. His DBS was on both sides. This did take the "normal" tremor away, but then the functional tremor came on.
I have looked at the glove and HIFU. When I showed it to my doctor she did not have much to say about it. I will definitely look into it again. Although, it sounds like you have had trouble finding the glove (?) At one time, I did see the glove for sale. Possibly it was not the same thing.

Hello Ed, I just read your reply to my husband and he is requesting if you would allow him to call you to talk with you. You can message me privately if you want on facebook.