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Living with MDS

Blood Cancers & Disorders | Last Active: May 17 5:49am | Replies (68)

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@snakebite

Just a quick comment. First, napping is good. It is certainly an indicator that your body most likely needs the extra rest. Sleep depravation plays a major factor in you health. Also, getting a Blood Transfusion when your numbers are low not only makes you feel better, which helps your attitude, but it also buys you time for other treatments to work and do their job. I dealt with them for years. At first I fought them thinking it was a last resort, or the beginning of the end.... it is neither, it is a necessary aid to help you get over the Hump. The Blood transfusions carried me through the really tough times and allowed me to make great progress in my journey back to a more normal life. Treatments like Dacogen can really take the wind out of your sails while it is doing it's job fighting the Cancer cells. Just about everything, RBC, WBC, PLT go down. So that transfusion of Blood really does give you a needed "Pick me up". Don't avoid them.

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Replies to "Just a quick comment. First, napping is good. It is certainly an indicator that your body..."

I certainly appreciate your comments on naps and transfusions. At this point in my condition, i.e., that my cytogenetics indicate that I am in a “good” risk category, the hematologist stated that it is risky to give me transfusions, since they might result in accelerating the leukemia cells. In other words, I am currently fortunate since I can live with the anemia (what a pain), work at avoiding infections (had three over the past few months), try to get the time for regular naps, and get on with life. But I will certainly research all of the alternative treatments offered through the various comments offered… I am most aprrecative…