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Thrombocythemia and need neck surgery: Will surgery make it worse?
Blood Cancers & Disorders | Last Active: May 26 9:01pm | Replies (53)Comment receiving replies
@pumpkin1
I was diagnosed a year and a half ago with ET, Jak 2 positive, and platelets in the high 400’s. Because of my age (69 at the time) the hemo tried to put me on Hydroxyurea right away-with not even mentioning aspirin. I refused and found another hemo who put me on 2 low-dose aspirin a day and no Hydroxyurea until I reach the 600 mark. I’m doing fine and just living my life! I’m also trying to drink pomegranate juice (although difficult for me), eat cucumbers, and other platelet-lowering foods (?) After numbers climbing over the last year, my most recent CBC showed that my platelet count went down from 567 to 524!
Hang in there and do your own research. Blessings and best of luck to you.
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Thank you for your response. It is encouraging to hear that your platelet count went down w/o taking the hydroxyurea. I think doctors/hematologists must go by the book, with the limited knowledge they have re. this rare type of blood cancer (ET). However, ultimately, it is our own individual decision (and right) to do the research, and then decide what to do with our bodies. Each person, and circumstance, is different. Wishing you the best of luck and many long, good years ahead!