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Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Autoimmune Diseases | Last Active: 2 hours ago | Replies (835)
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@jshdma

@becsbuddy Hello Becky. You mention an auto-immune disease that began at age 70. Is it possible to identify what it is? It seems that you have something but it is permanent. Otherwise, some treatment would have stopped it. The whole category of "auto-immune" seems to be very mysterious and intractable. Even cancer, which can be fatal, has treatments that create remission (temporary cessation) or even cure. Any info? Thanks for your ideas.

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Replies to "@becsbuddy Hello Becky. You mention an auto-immune disease that began at age 70. Is it possible..."
Becky, Volunteer Mentor | @becsbuddy | Sep 13, 2023

@jshdma I was diagnosed with chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids-CLIPPERS. I have lymphocytic inflammation on my brain. It was diagnosed at University of Colorado Health in Denver about 5-6 yrs ago. I have a neuro-immunologist who follows me. It’s been a long road, but I’m slowly getting better. One thing about autoimmune diseases, they are never cured, only managed. What a bummer! Very few cases worldwide.
Thanks for asking

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