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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: Feb 22 1:06pm | Replies (294)Comment receiving replies
Thought I’d give a quick update on my treatment with Zanubrutinib. Mostly good! I’ve been on it for six months. Had some bruising for a few weeks but that went away. I have had a bit of constipation and deal with it via probiotics and dried apricots. I’ve had three blood draws and all results were in the normal range. Will see my Dr in October. I am still not thrilled to have to take pills twice a day yet remain grateful for this treatment and others that wait in the wings for when I relapse once again. Some say a cure os five years away.
Replies to "Thought I’d give a quick update on my treatment with Zanubrutinib. Mostly good! I’ve been on..."
Sunfishgirl. It's nice to hear from you and current treatment. I see you have taken Zanubrutinib for 6 months. How long will you be taking this or is it a permanent schedule? It's good to hear your blood work is in a normal range. I hope things stay positive for you.
For me, a year ago I had the 4 Rituxan treatments and feel pretty good this past year. Luckily I have avoided covid, flu, and infections. I can tell my spleen is getting larger again as was confirmed by my April appointments. My next checkup is later in October,,,,,, labs,CT, bone biopsy.
Thanks for your update.
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Hi @sunfishgirl! Thank you for update about your treatment and the good news that it’s working! Think positive that you won’t relapse and the Zanubrutinib will keep you in remission. I don’t think anyone likes taking meds but when they work, it helps take the sting out of the daily chore a little. ☺️
I hope you have a great doctor visit in October with only good news! Thanks for checking in and let us know how your appt goes!