← Return to Prostate Cancer: The waiting to get going on treatment is killing me

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@andrejacques

Hello, Ellis-I’ve been on Lupron Depot for close to 10 years now, injection every 6 months. When I asked at first how long I’d have to take it, the answer was “The rest of your life.” Ok, well, how long is that? They wouldn’t answer. Side effects: said goodbye to my love life.
PSA was around 300; Gleason 9.
Since then, external beam radiation and Abiraterone, knocked the PSA down to less than 1, then went up again. Not much side effects. Chemotherapy with Docetaxel, didn’t do much except made me really sick. 7 treatments. Spot radiation to ribs for some mets.
The latest has been the full course of Pluvicto, 6 treatments. Minimal side effects. Dry mouth was about it.
The Pluvicto was more to just try to slow it down - incurable at this point.
I can’t seem to find out what comes next. Maybe Pluvicto was the last and best shot at it.
Next will be full body bone scan and PET scan to find out how much is left and where.
Considering my original PSA score 10 years ago, and the Gleason 9, I think I’ve done fairly well. Now being treated by Palliative Care. The last will be hospice at home, which my dear wife and I discussed thoroughly.
And that, dear friend, has been my journey. It certainly has been an interesting one!

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Replies to "Hello, Ellis-I’ve been on Lupron Depot for close to 10 years now, injection every 6 months...."

How old are you now? I am 79 and had radiation 2017, clear till 2020 mets to L2 lumbar which radiated 1 inc out back on Xolodx then in 23 its back in L1 as 1 inch and small in T 10 T 11 so put me on Xtandi and Xgeva no radiation as too close to L1
Psa dropped from 9.8 to 1,7 then 2.3 then 3 now What's next? Or am I god for 5 yrs I feel great

I am sending good thoughts to you and feel bad you had to go through this I am newly diagnosed and deciding between surgery and radiation i am a 4+4 am in buffalo ny and not confident they are the best here went to cleveland clinic saw surgeon not radiologist he ofcourse recommended surgery but i just dont no what to do i am scared to no end anyway adivce would be nice but before that once again I am wishing you happiness and a good run you sound like a wonderful confident strong person so I think you know what your doing bless you and your family life is tough

@andrejacques, you may be interested in this related Discussion:
- What is the recommended treatment after 6 Pluvicto doses?
https://connect.mayoclinic.org/discussion/what-is-the-recommended-treatment-after-6-pluvicto-doses/