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Replies to "Thank you to all of you for your comments, suggestions (especially regarding attitude), and explanations. Although..."
Blood Cancers & Disorders | Last Active: 6 days ago | Replies (81)
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Replies to "Thank you to all of you for your comments, suggestions (especially regarding attitude), and explanations. Although..."
Hi @jps01, from my experience with leukemia and hundreds of blood tests over the past 4 years, all of my tests results are presented in the metric system. It’s a universally accepted standard for healthcare world wide. So your numbers from Canada should parallel those in the US, if that helps you out.
I’m happy to hear you’re in the low risk MDS group for progression. Deciding to take a treatment at this point is a personal decision. The watch-and-wait (or active surveillance) approach lets you avoid therapy's side effects until you need treatment. Treating MDS during this early stage hasn’t proved helpful according the the Leukemia & lymphoma society;
https://www.lls.org/myelodysplastic-syndromes/treatment/watch-and-wait
I did find a list of potential treatments for MDS should you be interested in the future:
Less aggressive treatments are:
Azacitidine (Vidaza)
Decitabine (Dacogen)
Decitabine and cedazuridine (Inqovi)
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Vidaza
https://news.cancerconnect.com/myelodysplastic-syndrome/vidaza-improves-survival-in-myelodysplastic-syndromes#:~:text=Vidaza%20was%20the%20first%20agent%20approved%20for%20the,effects%20on%20survival%20have%20not%20been%20clearly%20established.
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INQOVI https://www.inqovi.com/?msclkid=782b208c32841e96dd324473bf27d947&utm_source=bing&utm_medium=cpc&utm_campaign=Patient%20-%20Unbranded%20-%20Treatment&utm_term=how%20to%20treat%20myelodysplastic%20syndrome&utm_content=Treatment%20-%20Myelo
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This article explains MDS and lists a number of potential treatments
https://www.cancer.net/cancer-types/myelodysplastic-syndromes-mds/types-treatment
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Reblozyl to treat anemia in MDS https://www.curetoday.com/view/fda-approves-reblozyl-to-treat-anemia-in-mds-subset
I love your attitude and honestly that’s the best way to live life! Enjoy every day while still taking those much needed precautions to avoid illness. I’m right there with you but I don’t let a compromised immune system stop me from enjoying my second chance with life. ☺️