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Haptoglobin RBC major issues

Blood Cancers & Disorders | Last Active: Sep 11, 2023 | Replies (14)

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@jerrysgirl3

MRIs were both good - no sign of stroke YAYYY! However .... then what is it ? Had some labs done today to test for anemia. I wish he had done a retest of my tick borne ehrlichia 🙁. I just took some Phillips Milk of Magnesia. If that doesn't work then on Wednesday I'll try a Fleets enema. My fear is that the stool is so hard that it won't be able to soften enough to actually come out 😳.
Rochester is the closest. Wait. Is that Rochester MN?? Or NY? I have Cancer Resource Services that will pay for hotel food and transportation 100%!! That's a long way always and well away from family.

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Replies to "MRIs were both good - no sign of stroke YAYYY! However .... then what is it..."

Ohhhh that’s wonderful news that there’s no evidence of a stroke. I’m wondering if you are still having side effects of the tick borne illness?! That can be so pervasive!

Good luck with the Milk of Magnesia. That name conjures memories of my childhood…my mother swore by that stuff and I was a frequent flyer. Ugh… The enema’s tend to work rather well. So I wish you a healthy delivery. 🙃

Unfortunately, I’m not talking about Rochester, NY.
Mayo Clinic has 3 main campuses. Rochester MN, Phoenix AZ and Jacksonville FL. They are all world class medical facilities where people do come from all over the planet to be treated. They are mindful of the fact that patients come from great distances so quite frequently, if you’re diagnosed at a Mayo Clinic they work with your local clinic for you to receive care closer to home. I had my transplant at Mayo, still return for routine followups, but blood work, infusions and such could be done locally so I didn’t need to travel back to Rochester.

However there are Centers of excellence who partner with Mayo Clinic and share the same vision of Patient’s needs come first.
I know you’re out east, here’s the map of the Centers of Excellence. https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

This might be an option for you.