Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Hi elizm: I never have any problem s when using "PayPal" as they are the middleman and protect me when it comes to paying someone. I rarely give out my credit card info or a debit card, as the money is gone without recourse and they have a somewhat direct path to funds. So I use PayPal!

They said that they were out of the warming type and only had the Cooling in stock. Sometimes in the winter when my feet are really burning but yet very very cold when I touch my pale white colored cold feet, I will use the warming type. For my Arthriturs in my fingers I only use theier warming type. I will pay what ever it take for some relief from the SFN burning that I have and I used to pay a Florida Compounding Pharmacist 600 USD each month and now it is $20 twcie per month. MicTim

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@mictim

Hi elizm: I never have any problem s when using "PayPal" as they are the middleman and protect me when it comes to paying someone. I rarely give out my credit card info or a debit card, as the money is gone without recourse and they have a somewhat direct path to funds. So I use PayPal!

They said that they were out of the warming type and only had the Cooling in stock. Sometimes in the winter when my feet are really burning but yet very very cold when I touch my pale white colored cold feet, I will use the warming type. For my Arthriturs in my fingers I only use theier warming type. I will pay what ever it take for some relief from the SFN burning that I have and I used to pay a Florida Compounding Pharmacist 600 USD each month and now it is $20 twcie per month. MicTim

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@mictim So you are confirming that Michael's Botanicals uses PayPal over the phone... but how much did a bottle of NeuroFreeze cost you?

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I have peripheral neuropathy in my feet which has progressed over the years. I am taking Lyrica which mitigated the pain much of the time but n to always. Sleeping is often a problem. I saw a full page ad in my local paper advertising a seminar on the use of stem cell therapy as a treatment with PN. I am intrigued and am wondering if anyone has had any experience with that procedure or has knowledge about it.

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my friend paid a lot of money to do it for his PN and it did nothing, be careful, sometimes the promises are too good to be true.

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@rpercy7

I have peripheral neuropathy in my feet which has progressed over the years. I am taking Lyrica which mitigated the pain much of the time but n to always. Sleeping is often a problem. I saw a full page ad in my local paper advertising a seminar on the use of stem cell therapy as a treatment with PN. I am intrigued and am wondering if anyone has had any experience with that procedure or has knowledge about it.

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Hello @rpercy7, welcome to Connect. As promising as stem cell research is for a lot of things, I don't believe there has been any successful treatments for neuropathy. You might want to read through the following discussion and meet other members who are discussing stem cell therapy for neuropathy.

Groups > Neuropathy > Stem Cell Therapy for Neuropathy
https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/

There are also some warnings about all the stem cell clinics popping up.

Consumer Updates > FDA Warns About Stem Cell Therapies
https://www.fda.gov/forconsumers/consumerupdates/ucm286155.htm I agree with @salsa that if it's too good to be true it usually is.

John

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@medic7054

Why are your arms in braces? Carpal Tunnel Syndrome is just in your wrist.

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It has to support your wrists from bending so much in that unnatural position. It is caused from repetitive movement,

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I'm wary of new products that are marketed like 'snake oil', using words like 'miracle'. Peggy

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@elizm

@mictim So you are confirming that Michael's Botanicals uses PayPal over the phone... but how much did a bottle of NeuroFreeze cost you?

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No, sorry it took so long as I have been on the other mayo blog page. I just saw there website a few days ago and they use PayPal directly. it was $19.95 for the cooling type. They hav a flat rate of $2.99 USPS. MicTim

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@mictim

No, sorry it took so long as I have been on the other mayo blog page. I just saw there website a few days ago and they use PayPal directly. it was $19.95 for the cooling type. They hav a flat rate of $2.99 USPS. MicTim

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Thanks, MicTim

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This is my first post about P/N which I've experienced for 15 years starting at age 65. It progressed from my feet up to my thighs and it is felt in other upper regions of my body - even my face. My Internist prescribed Gabapentin 100 mg but the side effects are off putting (dizziness) so I have NOT started this medication due to being semi-ambulatory and already have poor equilibrium, therefore I don't want to add side effects which will further increase disequilibrium. My question: I request others who have taken Gabapentin to offer their experience with this drug and how it may (or not) have helped ameliorate the discomforting symptoms of neuropathy. My thanks for any information.

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