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PV and peripheral artery disease PAD

Posted by seamus1010 @seamus1010, Feb 16, 2023

Recently diagnosed with PV.
several years ago, I had an angioplasty in my right femoral artery due to a significant blockage there, diagnosed as peripheral artery disease. I hadn’t smoked in over 30 years. I’m curious if there is an association between PAD and PV.

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casevin7 | @casevin7 | Sep 11, 2023
In reply to @casevin7 "I am beginning to think my mom had this and no one told us. She lived..." + (show)
@casevin7

I am beginning to think my mom had this and no one told us. She lived with myelofibrosis for over 30 years and finally passed away after surgery to insert stents in both legs. She always complained her legs hurt and ached but the doctor kept dismissing her because of her age. She had 90 percent blockage in both legs! Unfortunately she did not survive the surgery because they tore her artery/vein and she slowly bled to death 21 days later.

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In addition, I am now fighting PV with my monthly blood draw today. Mom's mom had AML and my sister's daughter has neutropenia. So don't tell me that this blood disorder doesn't run in families!

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deannarls | @deannarls | Sep 11, 2023

I am so sorry for this - I am sure you did your best at the time. I am 67 and this all started for me this past April. I am still working - I love my job and o do not want to be disabled or handicapped by this. I should hear from Mayo this week and I will go there if they agree to see me.

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artymarty | @artymarty | Sep 11, 2023

Re: connection between PAD and PV....I have been diagnosed recently with both PAD and PV. I am an 80 year old, active, never smoked, usually ate well etc. History of CLL, but it has not been active. Have not met with a vascular surgeon yet (Oct). Have a JAK2 mutation which initially led to dx of ET , but blood test revealed low erythropoietin which likely means it early PV. Not sure anyhow has made a direct correlation between PAD and PV- am on xarelto, baby aspirin, hydroxyurea and had a phlebotomy last week. Lots to think about....

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