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Haptoglobin RBC major issues

Blood Cancers & Disorders | Last Active: Sep 11, 2023 | Replies (14)

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@loribmt

Good morning, @jerrysgirl3. Wow, after reading this post, my had went to my heart!! I’m so sorry you have to deal with that lack of medical professionalism where you life. I’m had to admit I’ve been spoiled with the care at Mayo. So if you can at all get to Rochester or Florida, which ever works better for you, I really hope you can do so!
I’m with Mayo-Rochester though it’s 4.5 hours from where I live. But their collaborative approach has all the specialists that you need on one team. They’re brought in as needed. In my case, I had issues after my bone marrow transplant that required a neurologist and a liver specialist, all brought instantly with a request from my transplant doctor. So all 3 of them would be in my room talking together.

Your poor body is in a hyper response mode right now with the hives developing just being around flour! I also hope your issue with constipation can be resolved soon as well. That’s just an awful feeling! I think I mentioned yesterday about the one and only time I had an enema…it was actually while I was in the hospital for 5 weeks. Omg it was hilarious between my oncology nurse and myself. I wish I could share the entire story here, but suffice it to say, my experience was legendary in our chemo ward and anytime I go up to visit all of the nurses and I just crack up…

Our husbands are real troopers aren’t they? I always felt badly too that I was the one that took advantage of the “for better or worse”. But these aren’t health issues that we asked for nor are they our fault. I only hope you can find a larger clinic where your doctors can work together to make you whole again!
Let me know what you find out from neurology today. Hugs

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Replies to "Good morning, @jerrysgirl3. Wow, after reading this post, my had went to my heart!! I’m so..."

MRIs were both good - no sign of stroke YAYYY! However .... then what is it ? Had some labs done today to test for anemia. I wish he had done a retest of my tick borne ehrlichia 🙁. I just took some Phillips Milk of Magnesia. If that doesn't work then on Wednesday I'll try a Fleets enema. My fear is that the stool is so hard that it won't be able to soften enough to actually come out 😳.
Rochester is the closest. Wait. Is that Rochester MN?? Or NY? I have Cancer Resource Services that will pay for hotel food and transportation 100%!! That's a long way always and well away from family.