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Welcome to Connect, @tjakusz I’m sorry to hear you developed AML. There are several of us in the blood cancer support group who have had AML, received bone marrow transplants and we’re doing great.
I just celebrated my 4th rebirth day the end of June, @alive is in her 7th year post transplant, @edg1123 at 3 years and @kt2013 with a milestone of 10 years! So there is hope beyond all the hoopla your going through with the AML treatments, reaching and keeping a level of remission until Transplant.
So if you have any questions at all don’t hesitate to pop into our discussions or ask us anything! We’re here to offer support! ☺️
~Acute myeloid leukemia (AML): What can I expect?
https://connect.mayoclinic.org/discussion/can-someone-address-acute-myeloidal-leukemia/
~My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
What treatments are you going through for the AML? Do you have any pesky mutations?
Replies to "Welcome to Connect, @tjakusz I’m sorry to hear you developed AML. There are several of us..."
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Hello tjakusz! Welcome to this special club. Nobody wants to be in our group, but once you are it is a great place to get information and support. I am kmz2013 and am celebrating every day living in my 10th year of AML remission. Transplant was no picnic, but I knew it was my best chance to get to a durable remission. The key for me was to organize my support team of family, friends, and work colleagues to get through the side effects, tests, and appointments that accompany transplant. My other goal was to stay in the day. Yesterday is gone, tomorrow is uncertain, so today is my present. It isn’t always easy to ask for help, but I like helping others, so this was my turn to allow others to experience the joy of giving. Best wishes, we will be thinking and praying for you. Keep in touch, I am sending you a sunrise!