Hi @casseth02, your post resonated with me. My husband is 45 years old. He was diagnosed with POEMS Syndrome earlier this year. It has rapidly taken over our lives. Prior to being diagnosed with Diabetes in the past couple of years, he was a healthy man. Last October he started to have health issues. In April of this year, he had numbness in his feet. By June he could barely walk. He had a plasma exchange in July and an Autologous Stem Cell Transplant at the beginning of August. By the time he left the hospital he had numbness in his fingers. Today, he is at a rehab facility with very little control of his extremities.
We have two young boys (3 and 7) and he is scheduled to come home this week. While I am happy to have him home, after almost 2 months... I am scared of not being able to do enough for him. How will I shower him (home limitations)? Will we be able to get him to/from Dr. appts safely? I went to rehab last week to learn and practice getting him to the car and what not. It was hard but we did it... even if he may have gotten some bruises. Ultimately, they recommended I get a lower car... at least for appointments.
I honestly am just so overwhelmed with thoughts that I don't know where to begin... Any advice?