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Anyone still have pancreas pain while taking Lanteotide?
Neuroendocrine Tumors (NETs) | Last Active: Sep 20, 2023 | Replies (18)Comment receiving replies
I have metastatic liver NETs (secondary to pancreatic), have been on the shot for a year now (it's my 2nd go around with them as I could not tolerate it the 1st time I tried) and I still have off and on again liver pain, but am tolerating the shots much better. The tiredness gets old, but unfortunately i'm on other rx's that do the same. If you haven't, try the shots again after a few months or even years if your oncologist is cool with it and jives with whatever your current therapy is.
Replies to "I have metastatic liver NETs (secondary to pancreatic), have been on the shot for a year..."
Hello @wolf359 and welcome to the NETs support group on Mayo Connect. I so appreciate you sharing your journey with NETs and the injections. I'm assuming that the injections you speak of are Lanreotide?
It's always great to have another perspective on how a reaction to a med can change over time. I see that the liver NETs are secondary to pancreatic NETs. How long ago were the pancreatic NETs diagnosed? I'm also wondering if you had any surgeries and/or embolizations?
I'm looking forward to getting to know you and learn more about your journey with NETs.
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I am still taking them. I was just concerned about the things I was experiencing and wondering if it was related to the tumors or the shot and whether the pain is somewhat expected. Just wanted to see if anyone else maybe had experienced the same. I am still very new to this diagnosis and treatment. I appreciate all of the input.