← Return to Haptoglobin RBC major issues
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Blood Cancers & Disorders | Last Active: Sep 11, 2023 | Replies (14)
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Replies to "@loribmt I had MRIs (results not back yet) with and without contrast and an EEG. Problem..."
Hi @jerrysgirl3. EEGs and their results are way out of my area of experience. I think it will be helpful to talk with them about what you felt you needed to do during the tests. You have have done everything just right. ☺️ But don’t read too much into results you receive. In fact it’s better if you don’t go looking at Dr Google to interpret your results. Some reports can put the heebie geebies in us and we find out they’re actually benign comments.
But I still feel, with all you have going on with your CLL and Lupus, that you would do well to find another hematologist/oncologist who will take your situation seriously. I know I gave you the link to Mayo Clinic. But even if you sought treatment closer to home with a larger teaching hospital that would be valuable. You need a place which will use a collaborative, bringing in different specialists on one team such as an hematologist for you CLL, a rheumatologist for your Lupus, etc.
When will you be having the followup with the doctor who ordered the EEG and the MRI?