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← Return to Haptoglobin RBC major issues
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Oh my goodness, @jerrysgirl3, you’re dealing with so much right now. I’m such a hugger and wish I could reach through the ‘puter…
Knowing your past history with your perforated bowel, I’m sure you’re feeling pretty stressed with the current constipation. If ‘things’ aren’t moving, it can congregate in one area causing more of an impaction. Sometimes that’s where an enema can be very helpful. (I’ve only had one once when I was in the hospital for 5 weeks on chemo. As much as I dreaded the thought, it was a godsend, didn’t hurt and totally did the trick!) But with your bowel history issues, lupus and the CLL it would be best to check with your doctor to see if it’s safe for you to try. If you’re on immunosuppressants and have a low white blood count, that can be dangerous. No pun intended… I hope things come out all right! 🙁
Having brain issues sounds serious. Are you having loss of memory, balance, that type of thing? What type of testing will you be having? Please keep me updated. Is this testing happening soon?
Replies to "Oh my goodness, @jerrysgirl3, you’re dealing with so much right now. I’m such a hugger and..."
@lorimbt I am on no meds and my wbc is over norm. Last one was 44,000. Prior was 67,000. Goes up and down. And even with that. If I have an infection my wbc will go up as well as with CLL!! But you need to look at MY OTHER NUMBERS!! Which no doc has done.
I have done several Fleet liquid glycerin suppositories and they sometimes help. But I'm having this massive low sodium issue, with primary having me take salt hydrating packets and I'm only doing a little bit of that (not the 1000 that each packet has but I use a little bit in a glass of water) but I don't think thats helping the constipation issue considering salt is used to dry things out and that's my issue. Hard and dry.
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@loribmt I had MRIs (results not back yet) with and without contrast and an EEG. Problem with the EEG is that I was responding to their commands (eyes closed to stimulate sleep (!) eyes open) by focusing on memories of my late mom and dad, and my grandson video of him walking) - I was focused on these! There was no REM sleep! I was staring at my memories not running around with them! I know I have left sided issues but I think they were not clear to me in how I should respond. I thought the more quiet my thoughts are, the more clearer brain wave activity they would get! Not the opposite! This is what report said :
Description Electro cerebral activity consists of well modulated 8-9 Hz background activity that attenuates symmetrically with eye opening. Low amplitude faster frequencies are seen frontally. Sleep Drowsiness is characterized by attenuation of the background, intermixed diffuse slowing and slow lateral eye movements. Activation Procedures: Photic stimulation induces no abnormalities. Hyperventilation was not completed. Abnormal Potentials: There are persistent bifrontotemporal 4 to 5 Hz large amplitude waves seen in the recording. Also noted are infrequent left frontotemporal sharp waves. Electrocardiogram: A single EKG rhythm strip performed during the recording reveals no significant arrhythmias. Impression: This is an abnormal awake and drowsy EEG because of the persistent bifrontotemporal slowing indicative of bifrontotemporal cerebral dysfunction. Also noted are infrequent left frontotemporal sharp waves that may be potentially epileptogenic. To further delineate this abnormality, evaluation with 24-hour ambulatory EEG is recommended.
And yes. I am terrified of prior abdominal issues and constipation!! My Gastro doc next appt is in Oct! I got it in August and out myself on the "cancellation list". Thank you so much for understanding my concerns 🙁