Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@pfbacon

I don't understand 'protocol' in this context. Is it like a medical 'program' ?

Jump to this post

Just the name the group gave the list of supplements and vitamins = the protocol 🙂

REPLY

If I'm not mistaken, in the medical world doesn't "protocol" refer to the course of action or treatment for a medical condition?

REPLY
@margottaylor

If I'm not mistaken, in the medical world doesn't "protocol" refer to the course of action or treatment for a medical condition?

Jump to this post

REPLY

Now if only that knowledge would translate into having the cure for PN. 🙂

REPLY

Thank you John...I will look at the site. I just got out of the hospital with pneumonia .They cut me down to 600mg from 800mg of gabapentin every 6 hrs. I did ok. with the pneumonia I didn't care. When I got home I started taking gabapentin 800mg every 9hrs. I want so badly to off of gabapetin completely. I was told in the hospital that 800 mg every six hours was toxic. So wish me well on this venture. Thanks again for the information. JJ

REPLY

can anyone direct me to the site that suggest vitamins & other things for natural relief...PLEASE

REPLY
@jjwest

can anyone direct me to the site that suggest vitamins & other things for natural relief...PLEASE

Jump to this post

@jjwest - I'm not sure if this is the site you mean but I posted the information that helps me in an earlier post in the discussion here which has links to the site:

https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=90#comment-290889
REPLY

Some of you seem to have tapered off of gaba and lyrica ... did you change to something else? I know one person who takes 'Stratera' - I have no idea how to spell it. I'm past the point of any vitamins or cbd or over-the-counter stuff helping (already done those). Peggy

REPLY

I was on that plus others ! Best thing I ever did was sign up with Mayo for pain management and got off most meds and learn a better way to deal and understand my needs. Mayo staff and doctor were not pills pusher BUT helpful in getting to know ME and my pain levels. We are all NOT “ one pills fits all”.

REPLY
Please sign in or register to post a reply.