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When should I be checked.

Hypertrophic Cardiomyopathy (HCM) | Last Active: Oct 22, 2023 | Replies (7)

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@karukgirl

Greetings and welcome to Mayo Connect @dkmennen5, you have discovered a wonderful place to learn more about your condition. This is a place to share with others just like you and the HCM community is an amazing group of folks. It sounds like from what you are saying, you were tested almost ten years ago, but nothing was detected? Was the testing a genetic test or an echo?
We are all so different, but there are many symptoms in common with each other as well with this disease. I'm glad to hear you have an appointment in two weeks. Only you can decide for yourself if that timeframe is too far out based on how you are feeling. Two weeks goes by pretty quick, so that is a good thing. Have you been diagnosed by the cardiologist already?
From my own personal experience, I remember the level of anxiety was pretty high when my heart was pounding, racing, I was short of breath and had chest pain. I used to fear that I would die suddenly! Anybody would be anxious, so I am not surprised you may have some stress with whatever symptoms you are experiencing.
I do hope that your cardiologist is up on HCM and HOCM, because that is super important. I would learn as much as you possibly can from reading others stories here and also there is a website, https://4hcm.org, that is full of great information. It is important that you learn as much as you can because this condition is often mistaken for a host of other heart issues and misdiagnosed for years sometimes. You may have to be your own best advocate when you finally do see the doctor. Make a list of your symptoms so you can share them at your appointment. Talk about how your symptoms impact your life. Share your anxiety with the doctor.
Again, only you get to decide if two weeks is too far out. It does go by really quick and will allow you to do some research in the meantime.
What symptoms are you experiencing, if I may ask? Who else in your family has had this? When did you start to notice something was not quite right with your heart?

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Replies to "Greetings and welcome to Mayo Connect @dkmennen5, you have discovered a wonderful place to learn more..."

Debra i juss read ur comment. Very good info, ty for sharing. May i ask what cured u of your symptoms that u spoke of? Since i have been on metropolol and diltiazam i have had abso no more light headedness. I had abso no s.o.b. since diagnosed in may 2023, however juss in the lass 2 weeks i am starting to notice some of that. I juss take it easy and dont push myself.
Also wanted to say that i was diagnosed with hocm after having the suggested echocardiogram. Then i was asked to get a cardio mri for confirmation...after doing the mri it was co firmed.

And yes u r so rite, 2 weeks goes by pretty quick.
Good luck to all