Relationships: How do you form and maintain them when ill?

Posted by buzz23 @buzz23, Sep 7, 2023

How does a sick person form, and maintain, healthy and sustainable relationships with others, platonic and non-platonic?
The human existence baffles me. I enjoy observing and studying it. It brings up a lot of questions.
Being introverted, and having been raised by a parent that had a pathological level of introversion, I have settled into a “fly on the wall” kind of existence. This frees you up to pay attention to what and who is around you. It makes me ask so many questions, most of them being “why” or “how” questions.
I understand that we are social beings, we are built that way. I also understand that our social interactions can have negative or positive effects or both.
I have seen compassion fatigue, I have seen burnout, and I have seen resentment come from a place where love and care formerly was.
So how does a sick person form and sustain healthy relationships? Healthy for both parties. Where do we draw the line between accepting care and love from someone dear to your, and taking or asking too much from a person?
I am drained and exhausted by all this, and I have had a lifetime of experience with this, what will it do to a person new to it? Will it not crush the person? How do I know that 2 or 5 years from now, this person won’t look at me and think that I robbed them of their youth? Is it fair to ask any of this of a person? The hospital visits, the in-hospital stays, the up and down over medication, insurance etc, the pain, the insomnia, the cancelled dates and activities, the not being able to get out of bed, the needing help with cleaning and cooking and errands. It seems more like a “you love me, and now you must pay for my care” situation, with the payment being in many forms (financial, time, energy, etc). How do you do that? Offload ‘too much’ on a person in the name of love? How do you exist in a dynamic in which you are the sun and therefore life must revolve around you? How do you take care of the other person? What can you offer or give in place of all that you are taking and all that you cannot do? Aren’t relationships supposed to be two-way streets?

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@olderdiva12345

Good for you, buzz. Are you a Lady or a Gentleman if you don't mind my asking.

Judith

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I love questions, both asking them and answering them. You never have to worry that I mind being asked something. I don't understand a lot of social cues and why and how some things are offensive. So if you have questions, ask away.
I am female, a 29 year old female named Tabitha.

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@olderdiva12345

Yes. Relationships must be a two way street. True love means thru thick and thin and until death do us part...and after that as well. You are ill and I understand having cared for someone who's days were become short. Don't be afraid and take affection and love where you can find it, my friend.

I have not been on this site for a bit and will stay with you if you have questions or just "Want to Talk". Okay?

Judith

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True, a relationship that isn't a two-way street ends up causing pain and distress.
I am ill and I have made peace with my mortality. My issue is not particularly fear, I just do not want to waste time and energy on the wrong people, I know I don't have forever to dispense freely.
You will probably regret that offer on the days when I am very chatty, but yes. I will take you up on that Judith. Thanks

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@alive

When I couldn’t do anything physically for my friends and family, I made sure that I let them talk about their lives, asked questions that were focused on them and not me. I know my husband was very overwhelmed by the burden of caring for me when I could barely get up to go to the bathroom by myself. I listened to him vent. I tried to imagine what it was like for him to have so much on his shoulders. He knew that was all I could do and he didn’t want to burden me more than I was burdened with the fight for my life.

When I began to get out of bed, I started cooking meals in a crockpot. It was so simple to just throw everything into a pot and let it cook. I had so sit down every few minutes to rest, but I felt good about doing something tangible for my family.

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Safe spaces and unhampered expression are grossly undervalued. That's great.
What if your husband wanted to vent about you? What would happen in that case?
I cook like that. And I cook in bulk so I can pack the rest in the freezer and heat it up later.

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Hi. I have met one of my best friends of Plenty of Fish years ago. He was like a member of our family and we miss him. I do NOT EHarmony...to me it was a sham and it was too much work and too personal.

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@joybo99

Cup theory, "spoon" theory, I get it.
My light "socializing" now takes the form of walking with my neighbor and her dog... On a good day.
I've had invitations to dinners and such. Unfortunately, dizziness & vertigo are ever-present, not fixable, and make even the briefest interactions quite a challenge.
Thanks for your response! Take care of yourself.

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Yep, we must pour out of our cups for others but also make sure our cups are being poured into.
That is full-fledged socialising, nice.
Would it help if the dinner was brought to you?
Thank you, take care as well.

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@buzz23

I want to study for my PhD in a different country, then decide whether to live there or go to an entirely different country afterwards.
Adventurous and a risk taker, no wonder I called you brave. We need more of such people. Most of us live rather dull lives. No, you don't sound like a shrew.
You, your husband, and your pups are lucky to have each other.
Sometimes people have an immortality complex and don't make the most out of life.

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That is true. One thought: If you study in a Foreign country and learn the language you may want to stay in that country. If I were younger I would get the "H" out of this one. The Government (local and Federal) make me sick. Almost moved to Costa Rica until I dug deeper and found the unpleasantness and problems of living there.

I can assure you that most people, expecially Americans, do not make the most out of their lives and take a leap of faith. Sounds as though you are willing to do that. Good for you.

Portugal is safe as is Panama I believe. My favorite is, of course, France with Italy being second.

Don't wait too long or it will be too late.

Good luck where ever you ago. You sound young.

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It sounds as though you have a plan with this friend of yours after you visit your family in Africa. My first husband was from JoBerg...very English he was.

A small village in France was about 1 km from my home sur la colene (sp?). Name if Le Val. Small, cozy and everyone knows everyone else. Market every weekend. Nearest small city is Brignoles - both in the department in the Var. I loved it there and had more French friends that I now have in the States.

All the best with your studies.

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@buzz23

Have you identified anything that helps with your self esteem in relation to this?
It is sad when people value you for one particular thing about you and not for who you are as a person, because they crumble or leave the second that one thing changes. Those are not your people.
Some days/periods are too difficult to be the best version of yourself. Sometimes, simply existing is all we can do, and that's okay.

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@buzz23 Tabitha, I have learned, the hard way like so many of us here, that I need to honor myself, and not "just go along with it" because that is what someone else wants. Nothing worse than how we can beat ourselves up, in my book. Like you, I am very much an introvert, and sometimes [okay, often!] miss the social cues, and that is from being an introvert and also on the autism spectrum with Aspergers Syndrome.

Having lupus, plus other health concerns to deal with on a daily basis, has not been easy for others to understand that some days are better than others, and what my energy level will be is a toss up. Once a week I take 12 mg of dexamethasone as part of my cancer treatment. I know that day, towards the afternoon, and into the next day, my energy level will be "up" so I plan for activities that might not get accomplished otherwise. A group of "friends" eventually excluded me, because I had to back out of plans. Now I have others in place who accept me for what I can do, when I can do it, and we are finding out that I am able to actually do more because they support me! Isn't that cool.
Ginger

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@buzz23

You have what I call a "King Arthur's round table", that's great.
May I ask what stage you are? And if you will receive treatment? Have you made peace with the situation?
It is an honest response, I'll take honesty over anything any day.

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Hi--glad to answer. My cancer situation is confusing. I have a rare neuroendocrine tumor in my breast. There is no treatment apart from usual breast cancer protocols. I've had a lumpectomy, radiation, and am on an AI. There are no stats for if any of this works for a NET. I turned down chemo as I have progressing kidney disease, diabetes, and am pulmonary impaired. My oncologist told me in October 2022 that my life expectancy was 1-2 years. I think partially she was pushing the chemo, but the regimen didn't have a great success rate with the ordinary breast cancer aspects and no info at all for NETS. Also, my nephrologist wasn't going to sign off on it! Due to this--and long held philosophical beliefs--I'm not "fighting" the cancer aggressively. Right now, my quality of life is quite good but my prognosis poor. The cancer is either stage 2 or 3--I've been told both. I've had four different pathology reports with 3 different labels. My oncologist is currently going with what Mayo said. I could go for fancier care, but have consulted with two different NET specialists at different medical centers. One refused to see me at all because of the location of the NET. Basically I'm referred to breast surgeons and oncologists who have never even seen this kind of tumor. I have totally made peace with the situation--but actually I was at peace with my own mortality and failing health well before I got cancer. I've always been questing for meaning and understanding, and have been helped in so many ways--from human relationships to art to religion to just looking within. Strangely, or perhaps not, this period in my life has been rewarding and even fun. Thanks for enquiring and valuing an honest response. Sometimes I find it difficult to be direct--but it is rewarding when I can be. Wishing all the best for you.

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@olderdiva12345

Hi. I have met one of my best friends of Plenty of Fish years ago. He was like a member of our family and we miss him. I do NOT EHarmony...to me it was a sham and it was too much work and too personal.

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Tinder did to me what eHarmony did to you. I've found 2 available apps: International Cupid and Zoosk.
Plenty of Fish isn't available for where I live.

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