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Living with MDS (Myelodyplastic Syndromes)

Blood Cancers & Disorders | Last Active: Dec 27, 2024 | Replies (98)

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@julie212

Hi. My husband was just diagnosed with MDS (and POEMS syndrome simultaneously - which is very rare) just 6 weeks ago. Luckily it was diagnosed early. He is on weekly Darzalex infusions (Monoclonal antibodies) and starting lenalidomide this week. I'm trying to learn everything about managing, coping and daily living with these conditions....... did the B12 shots help?

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Replies to "Hi. My husband was just diagnosed with MDS (and POEMS syndrome simultaneously - which is very..."

Hi @julie212, in addition to this discussion about MDS, you may also be interested in joining these discussions related to POEMS:
- Husband with POEMS Syndrome
https://connect.mayoclinic.org/discussion/husband-with-poems-syndrome/
- Has anyone been diagnosed with POEMS syndrome?
https://connect.mayoclinic.org/discussion/have-anyone-been-diagnosed-with-poems-syndrome/
How is your husband doing? How are you doing?