I have been diagnosed with Barrett's esophageus

Posted by janabelleca @janabelleca, Aug 28, 2023

I am recently diagnosed with Barrett's esophageus and admit I am scared. My Dad and my Grandfather both passed away from esophageul cancer and I have fears. I guess I am wondering how many of you have Barrett's and any thoughts you have for someone recently diagnosed. Thank you!

Interested in more discussions like this? Go to the Digestive Health Support Group.

I recently had a nissen fundaplication. I have had BE for 15 yrs. My paternal grandmother and brother passed with esophageal cancer. I no longer take omeprazole and have no reflux. I had a large HH among other esophagus problems. I drink a cup of coffee in the morning with milk and I have had no gerd. Everything I have read here helps BE.

REPLY

I’ve spent the past 2 weeks looking into molecular hydrogen therapy since first hearing of it. I was shocked by the amount of scientific support for something I’ve never heard of.

But then, why would I have heard of it. My life was blissfully unaware of everything I’ve had to learn. Like the fact that swallowing problems could happen, or that they could be a sign of cancer. That there’s something called Achalasia. That that isn’t what is causing my husband’s sudden swallowing issues (Feb 2023). That his hiccuping wasn’t just a funny thing that happened when he ate too quickly (for months before that). That a radiologist could look at a barium swallow (in March) and send a report saying “it’s normal “, only to change his mind in August and say, “In retrospect, there’s a mass consistent with a malignant tumour”. That the doctors call his illness terminal. That it’s hard to break this news to a 6 and 12 year old.

I’ve learned a lot of things and the only one I’ve enjoyed learning is that God’s grace, through Jesus, is truly sufficient and that there really is a peace beyond all understanding.

Praying for the best outcomes for you and I’m so glad you have the awareness to do all that you can to protect yourself.

REPLY
@justtrust

I’ve spent the past 2 weeks looking into molecular hydrogen therapy since first hearing of it. I was shocked by the amount of scientific support for something I’ve never heard of.

But then, why would I have heard of it. My life was blissfully unaware of everything I’ve had to learn. Like the fact that swallowing problems could happen, or that they could be a sign of cancer. That there’s something called Achalasia. That that isn’t what is causing my husband’s sudden swallowing issues (Feb 2023). That his hiccuping wasn’t just a funny thing that happened when he ate too quickly (for months before that). That a radiologist could look at a barium swallow (in March) and send a report saying “it’s normal “, only to change his mind in August and say, “In retrospect, there’s a mass consistent with a malignant tumour”. That the doctors call his illness terminal. That it’s hard to break this news to a 6 and 12 year old.

I’ve learned a lot of things and the only one I’ve enjoyed learning is that God’s grace, through Jesus, is truly sufficient and that there really is a peace beyond all understanding.

Praying for the best outcomes for you and I’m so glad you have the awareness to do all that you can to protect yourself.

Jump to this post

My Dad was suffering from hiccups for approx. 5 months before his diagnosis. The Oncologist said that this is a sign of a tumor - I have never heard of this before or since. I wish somehow that some of these "signs" were more commonly known.

I am so sorry that your husband and you and your family are going through this. May God hold you in his loving arms.

REPLY
@janabelleca

My Dad was suffering from hiccups for approx. 5 months before his diagnosis. The Oncologist said that this is a sign of a tumor - I have never heard of this before or since. I wish somehow that some of these "signs" were more commonly known.

I am so sorry that your husband and you and your family are going through this. May God hold you in his loving arms.

Jump to this post

@janabelleca, what follow-up schedule has your GI specialist suggested to monitor your esophagus?

REPLY

Mayo saved my husband's life from BE and EC......they are truly leading experts on this. A very grateful wife

REPLY

I have had a diagnosis of BE for over 25 years. So far has not progressed to cancer. After years on PPI with dreadful digestive sequelae, including in ability to digest nutrients properly, severe anemia etc., I have managed to heal my gut lining, improve my microbiome and stay off of PPIs. For the BE, I take black raspberry powder (in Kefir) because recommended by Dr. William Liu in his book on how the right foods can improve your health. Alcohol decidedly makes it worse. I find Intermittent Fasting helps enormously. I eat in a max of a 7 hour window (from noon+ to before 7). Have lost a lot of weight (41 lbs) slowly...takes the body a while to prune back just the excess blood vessels safely. You can do a tremendous amount to heal yourself. Remember all the cells in your body turn over no longer than 7 years that means a whole new you. Educate yourself widely on nutrition. Learn to "hear" your body and what makes it purr and what makes if growl. Good luck on your health journey.

REPLY
@colleenyoung

@janabelleca, what follow-up schedule has your GI specialist suggested to monitor your esophagus?

Jump to this post

I am waiting for an appointment for another endoscope., he said I should be scoped annually. Other than that they just put me on the PPI's.

REPLY

I get my EGD and colon scope on Oct-3. I'm hoping my BE is not seen and no other problem areas are seen. I've been off PPI's for about 4 months now and I feel normal.

REPLY

My BE diagnosis is now about ten years along. I also have a string of Merkel's cancers in my face, mouth and esophagus. I think it is just something to allow me to keep my bellyaking gene in fine shape. When I was born, the doc said I would not live three years, so I started grumping, and have been able to keep it up by focusing on the crap I really have {LGMDr23, etc) rather that dream up a new one occasionally. oldkarl

REPLY

I just started on Sucralfate The pantrozole made me burp and hiccup a lot which is painful. I am Sometimes it feels like I have a lump in my throat. Been going to borland groover but thinking about a second opinion. It has been 6+ years since the first diagnosis. Had two endos since. Any advice is much appreciated

REPLY
Please sign in or register to post a reply.