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Bone Marrow Biopsy & Aspiration

Blood Cancers & Disorders | Last Active: Oct 14, 2023 | Replies (15)

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@annahanna2005

I get lab results on my phone then I google them if I don’t understand them. With the mutation I couldn’t find anything. I asked the dr and she just said we will discuss all results at my follow up end of October.
How long did it take to get the results of the bone marrow biopsy?
Hope your husband is doing well and glad you were able to have his dr to turn to.

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Replies to "I get lab results on my phone then I google them if I don’t understand them...."

Good morning, @annahanna2005. I can certainly appreciate how frightening all of this is for you. Especially having tests run and then not having any follow up for a month. It also looks like you’ve recently moved. So on top of trying to find your footing in your new community, you now have a medical drama to contend with. I’m happy you found our Connect community so you don’t feel quite so alone.

If you had your bone marrow biopsy and aspiration Tuesday, it’s now Saturday. From my experience it’s too soon for all of the results to have been completed. It can take at least 7+ days to get the full panels run. There are some components of the testing which requires days to accomplish with sophisticated technology. So if the clinic isn’t able to accomplish some of the tests in-house, they will be sent out to labs such as Mayo Clinic.
Please don’t read too much into anything you’ve received so far. It can be pretty alarming to read and not understand the terminology or what it means in the context to your health. So my recommendation is to try and avoid searching with Dr Google for a diagnosis or even an interpretation.

What you can do is wait another week and then call the hematologist’s office to speak with a nurse practitioner. Make sure you convey to them that you’re experiencing new symptoms and you’re concerned. Ask if you can get in sooner or be on a cancellation list! Also, because your platelets have been increasing, if you feel unusual pain in your leg, it gets hot/sore, or things don’t feel right, have it checked to make sure you’re not experiencing any blood clots.

Were you ever told to take a baby aspirin? May I ask how high your platelet level is and your WBC? Are all your other blood values normal?

I chose not to do the bone marrow biopsy. The doctor did the JAK 2 and some other specific tests and said they can diagnose without it. Treatment is the same so he said no need. Many doctors push for it but maybe your labs called for it? Some people want it, not in belief either. A PV diagnosis doesn’t need it for confirmation.