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Chest Pain (GERD or a heart issue)

Digestive Health | Last Active: Nov 12, 2023 | Replies (12)

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@dsoots

I had been having the same exact problem as well. 2 years ago I started having trouble swallowing and chest pains that wouldn’t go away had them at night , would actually wake me up with chest pains and trouble swallowing started after the chest pains so went to my PCP was sent to ENT for a swallow study test but it was normal so with me having the chest pains my ENT sent me to a Cardiologist had a Echo Stress Test done and found out that I do have a condition called Mild Mitral Valve Regurgitation but my cardiologist said that wouldn’t be causing all my chest pains so after I started having nausea , shortness of breath and a bad taste in my mouth they sent me to another specialist this time GI so of course they did an upper endoscopy and colonoscopy said I had a spastic colon and internal and external hemorrhoids so that was causing my constipation issues but not the chest pain or the nausea or vomiting trouble swallowing so they sent me to another specialist this time to a motility specialist which was a breath of fresh air because they actually listened to me and I wasn’t crazy or had horrible anxiety pain! It was real what I had but extremely rare! First they had to do 2 very uncomfortable tests to confirm the diagnosis of Jack Hammer Esophagus and Laranopharangeal Reflux Disease not 1 but 2 disorders. The first test was to measure my PH in my stomach and acid reflux by doing this they insert a tube up your nose and then it comes back up your throat and it has a light on the end of it. The tube is connected to a monitor that you wear for 24 hours and you had to press certain buttons if you had to belch , nausea, vomit and you had to try to sleep with this thing in the back of your throat! But when I got up the next morning it was time to take the monitor to the doctor that did the test and have the tube removed. It showed that my ph balance was very low which meant that there was a very high amount of acid in my lower stomach but they still didn’t know what was causing all my other symptoms so they did another test where this time they inserted much larger tubing up my nostrils and all the way down to the very bottom of my stomach and then had me drink from a cup taking like quick sips at a time so when I attempted to do that I started gagging to the point I vomited really bad along with the chest pains too! This particular test is called the High Resonance Manometry test which every time I swallow it was taking pictures of my entire esophagus and it measured how fast my pressures were when I would swallow or eat or drink anything and at first the tech was silent and was just looking puzzled then she said here’s your problem right here! I said good what is it and can you fix it? He said I’m about 99.9 percent sure you have a rare disorder called Jack Hammer Esophagus and I said ok now we know what’s been happening for 2 years we finally have a name for but how can it be fixed? He said surgery and that following week I was being prepped for surgery but I had 2 types of surgery to correct both disorders a Nissen Dysplundification and a Myoectomy the Nissen was performed for my really bad acid reflux disease or GERD as they call it and the other the Myoectomy was for my lower esophagus because mine was not working at all causing the choking and nausea and vomiting and chest pains! So I was in the hospital for about 10 days because you have to be on an all liquid diet for 3 -4 weeks after surgery then slowly introduce soft mechanical foods for 3-4 weeks then finally solids again! It was a long hard process and I lost like 40lbs as well but it took care of all my symptoms! Maybe you need to see a motility specialist if I hadn’t I don’t know if I would be here now! It mimics a heart attack so that in itself is scary! Good luck!

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Replies to "I had been having the same exact problem as well. 2 years ago I started having..."

Yes they recommended I have the muscles cut in lower esophagus and a partial fundoplication