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Living with MDS

Blood Cancers & Disorders | Last Active: May 17 5:49am | Replies (68)

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@lorieafoote

My symptoms are about the same as everyone else. Was sent to oncologist found out my mean blood cell are to large,was diagnosis with mds.gave vitamin b12 shots.now wait and watch

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Replies to "My symptoms are about the same as everyone else. Was sent to oncologist found out my..."

Hi. My husband was just diagnosed with MDS (and POEMS syndrome simultaneously - which is very rare) just 6 weeks ago. Luckily it was diagnosed early. He is on weekly Darzalex infusions (Monoclonal antibodies) and starting lenalidomide this week. I'm trying to learn everything about managing, coping and daily living with these conditions....... did the B12 shots help?

@lorieafoote, for some people hearing that your treatment option is "watch and wait" can be unnerving. I prefer to call it active surveillance so it doesn't seem like passively waiting for the other shoe to drop.

How are you handling the watch and wait status? Do the vitamin b12 shots help your symptoms?