New Dermatographia: What is helping you?

Posted by jackographia @jackographia, Nov 28, 2021

If you don't know what dermatographia is, please feel free to read and participate, but this discussion is aimed at people who currently suffer from this illness. I have questions that I don't think anyone without the condition can answer. The onset of my symptoms began about a week after receiving the Moderna covid booster shot. (My 3rd covid shot) Which may or may not be a factor. My symptoms began with full body itching, where any scratching would lead to very easy skin reddening. I went into an urgent care soon after and was prescribed steroids (prednisone) and antihistamines. While these work to lessen the itch GREATLY, my skin still reacts to even slight scratches or pressure with easy redness. My condition is largely self-diagnosed, but my primary care physician agrees with it.

There is so little relative information about dealing with this illness that I feel like I need to reach out here to ask. If you have/had this condition:

1. Did you (like I am) develop a tightness in your esophagus? or any bowel issues?
2. Does your face get flushed, fully red and feel warm?
3. Do you know of any support groups that I can reach out to for information and solidarity?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Unfortunately, zyrtec can be one of those that causes rebound effects. So it is hard to tell if the vaccine is still bothering you. You need to be clear of antihistameans to have meaningful results from your testing. Or I would suggest somethng like allegra for the iching. best go for topicals like cool baths in oatmeal water or the old remedies.

REPLY

I just wanted to give an update:
In February 2022 I developed symtomatic Dermographism following the moderna booster. I had it all over my body. It was frustrating, irritating and very itchy. For about 8 months I was taking two antihistamines a day, then reduced it to 1 zyrtec a day. After 1 year it was one every other day, mainly the itch starting in my feet and palms weirdly. Now in July 2023 I took my last one 7 days ago. The itch comes sometimes but it is very mild and doesnt require the zyrtec. Hope this gives hope to others who are suffering, it will pass.

REPLY

i had my flu shot last week. ever since i have had these itchy welts. the one on my right hand had what looked like a bee stinger sticking out. removed it. don't remember feeling a bite at any time. Could be that? Been on steroids and antihistamines. I have had a total of 4 covid psizer shots. not doing any more cause i really zthink it is connected to our bodies reactions.

REPLY
@newyorknill

i had my flu shot last week. ever since i have had these itchy welts. the one on my right hand had what looked like a bee stinger sticking out. removed it. don't remember feeling a bite at any time. Could be that? Been on steroids and antihistamines. I have had a total of 4 covid psizer shots. not doing any more cause i really zthink it is connected to our bodies reactions.

Jump to this post

@newyorknill I understand you not wanting to get anymore shots. Vaccines can play around with our bodies, but they also do great things, like preventing serious diseases. Have you asked your doctor about the welts? What do they say?

REPLY
@daisymiq

I have been following threads that relate to the use of Xolair. There are two others who have used Xolair in the recent past, specifically @hellopeeps and @lo1. I am very curious and interested in knowing how you and they are doing after receiving it.

Jump to this post

I use Xolair for my moderate to severe asthma. My asthma is triggered by allergies. I moved to Austin, TX 18 years ago and from month 1, I started getting hay fever, then that went to migraines and hives, and severe asthma attacks. All of this landed me in and out of emergency rooms, emergency steroid shots, being on 4 different types of nebulizer solutions 2X a day - and many inhalers.... My doctor finally put me on Xolair almost 5 years ago - and I started it just as I was coming off of another asthma episode. My asthma "episodes" typically lasted several weeks and sometimes up to 2 months.

It took Xolair about 4 to 5 months before I noticed my asthmatic reactions were reduced. And since then, I haven't had a trip to the emergency room, steroids etc. The bummer is that in order for me to live a normal life, I have to get monthly Xolair shots (1 in each arm) plus I still need to continue with monthly allergy shots (4 shots). So in order for me to live in Austin, I have to get 6 shots a months... not fun but the alternative is worse.

REPLY

I'm African American female with light spots on my legs.ive noticed them within a year because they accumulate. How can I treat this condition.

REPLY

I have had Dermatographia for about 10 years. No one (even my Dr) told me what I could do for it except take antihistamines. Since then it seems to have gotten worse and I have many creams (both cortisone and Benadryl) in my cupboard. This started long before Covid. But I have had the tightening in the throat, flushing and bowel problems for a long time time.

REPLY
@snuanez1

I was diagnosed with Dermatographia about 7 years ago. It was under control after taking Loratadine daily. I had even stopped taking it and it seemed to be fine. About 4 months ago it started back up and came back with a vengeance. At first I didn’t think it was the dermotographia because it was a little different. After my morning shower my body had redness on my feet, legs, stomach, chest and back. I had an appointment with a dermatologist for a yearly checkup and was seen by the nurse practitioner. I told her what I was experiencing and also mentioned the dermatographia. She recommended taking Allegra in. The morning and Benadryl at night. I’ve been on the regimen and it’s been better but definitely has not relieved the itching . Just recently I began thinking if my dermatographia had returned due to the Covid vaccine. I had 3 Moderna vaccines and my last booster was Pfizer. After reading all these posts, I realize the vaccines are to blame. I will continue with the Allegra and Benadryl but will also talk to my doctor about this and see what she has to say. Will also check out the list of foods that are high in histamine. Unfortunately today my scalp is itching like crazy and I’ve had issues with the redness and lesions on my arm.

Jump to this post

I have Dermatographia since before Covid. But it has gotten worse over the last 5 years. It started out with my knees being red and hot after a shower, but now it is more of a rash on my arms, around my wasteline and belly, and on my knees. I take Zyrtec daily and Benadryl at night, and use all sorts of antihistamine and cortisone creams. Sometimes it helps lessen the itch, but other times I resort to putting cold packs on the itchy areas. It usually works but lately that hasn’t even worked. Needless to say I don’t get much good sleep.

REPLY
Please sign in or register to post a reply.