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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 9 8:01pm | Replies (175)

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@scoeyjr

Received diagnosis in January this year after being improperly diagnosed as having psoriasis then being told I was allergic to medication I was taking! Stage 2b, received 6 doses of Adcetris from February-June which cleared -up my open wounds, stopped my horrendous lymphoma itching and stopped the major leaking (lymphoma sweating). I’m on a new chemo to clear up the skin-it covers my torso and my back still is majorly discolored BUT I am better than 6 months ago! It just takes time and I am a bad case so don’t judge yourself by me! Just be patient and follow your doctor’s orders-Pet scans have been negative so no cancer inside, just in my T cells. Be well!

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Replies to "Received diagnosis in January this year after being improperly diagnosed as having psoriasis then being told..."

God bless you! You have been through so much!
My sister had 6 radiation treatments and it seems to have worked. Scares the heck out of you! Thanks for sharing. Be well and take care of yourself! Debby

I am aware how fortunate I was to be diagnosed Stage 1. I think it is worthwhile for the general public to be aware of misdiagnosis of skin conditions. I believe the light therapy may be able to keep me at Stage 1. Chemo, radiation are just not fun but it is amazing if you beat it.

@scoeyjr, how is the new chemo regimen working for you?