Massive spleen and dangerous low platelet count
Myelofibrosis.
Jakafi Hydrea Enrebic not the answer.
Then what is.
I am looking for years allready.
not using any medicine at this stage
Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
I've had several of Bone Marrow Biopsys. If you have the choice and your insurance will pay for it, do it in the Hospital where they can give you a sedative. You won't have any difficulty or pain at all if you get a sedative. If you have to do it in the Doctors office, it is a bit discomforting. Either way, it's over pretty quickly.
Good morning @bjd0501 Just wanted to check to see how the biopsy went yesterday. It’s too soon for results but how do you feel today?
Hello, I have watched my platelets steadily decline over the past year. They are presently 80 which doesn't sound too bad after reading the comments. I take Stelara for Crohn's and Prolia for osteoporosis. Mild splenomegaly. Multiple bruises and fatigue. Recently added vit K and bruising almost gone. Any thoughts?
Hi @catherine1290, what issues have been ruled out by your doctor? What are you investigating?
She sent me to a Hemotologist who told me I am fine.