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Infection after CAR-T cell therapy

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 18, 2023 | Replies (9)
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@lmn

It never was. I never knew about that. I’ve been asking everyday about getting regular infusions when he comes home. He was supposed to be taking Bactrum but he said he was told to stop. I was out of town for part of this because I had to take care of my parents. They both passed away in February this year. The doctor said he wasn’t supposed to stop. Miscommunication apparently. He’s taking it daily in the hospital and I feel like he will continue. I’m here now so I can “take over!” 😂
I’m sure that will go over well. Thanks so much for taking your time to assist us!❤️
Prayers for you!

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Replies to "It never was. I never knew about that. I’ve been asking everyday about getting regular infusions..."
Colleen Young, Connect Director | @colleenyoung | Sep 17, 2023

@lmn, how are you and your husband doing?

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Bob, Alumni Mentor | @grandpabob | Sep 18, 2023

Hello @lmn, my condolences on the passing of your parents. I hope you get the an answer on the IVIG infusions.

I tip my hat to you for advocating for your husband, as patients, we really need that help as medications and anxiety cause a lot of poor thinking on the patients part. Way To Go!

Given I missed your post from a few weeks ago, I echo Colleens question on how things are with you folks?

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