← Return to Relapse/return of symptoms after 21 days on Camzyos

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@quinn

Hi NewtosoHXM
After about five months on 5 mg Camzyos, the amazing benefits that made me a productive person again wore off. (My gradient never improved on Camzyos.) The Cardiologist switched me to 10 mg. I felt much better with great energy for several months, but then I actually felt worse qirh ounding heart, lightheadedness, presyncope, weakness, difficulty with sleep and eating, (even nausea possibly related to hypotension). Anyway Cardiologist said to stop taking it, that, "It doesn't work for everyone." which I did about a week ago. Slowly feeling better but I know HOCM symptoms especially the maddening fatigue will return once Camzyos is completely gone from my body in about three more weeks. Am looking into surgery but terrified of postoperative cognitive decline (POCD). There's lots of literature on this topic but, eager to fix your heart, Cardiologists downplay what is likely to happen to your brain especially if your elderly. I'm a 71-year old female.

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Replies to "Hi NewtosoHXM After about five months on 5 mg Camzyos, the amazing benefits that made me..."

Thank you so much for responding. I am truly sorry this is happening for you. I’ve got to just hope I’m one of the lucky ones it works for. It’s corny I know, but I’m trying to make everyday count and well, I just keep swimming - the place where nothing bothers me. If it helps at all idk, or gives any comfort, I have friends who have had heart surgery and are doing very well. Wishing you well and yes this is very scary.