My first symptom of a problem was galactorrhea at about age 34--my son was 5 and I was not longer breastfeeding. I reported to the OB but he was not concerned. I would have times with weight gain no matter what I did, then loss, carpal tunnel syndrome, intermittent insomnia--sort of waxing and waning stuff. After a hysterectomy at age 52- I developed galactorrhea again and this time a prolactin level was checked- it was high--an MRI then showed an 8-9 mm pituitary tumor. An IGF-1 level was checked but was in the high normal range so I went on cabergoline--I noticed that my wrists and fingers seemed a little smaller but didn't think much of it. When I saw endo #3 she had reviewed my medical record and walked in the room and said I think you have Acromegaly! She put together the pieces of hypertension, colon polyps, carpal tunnel syndrome, wedding ring enlargement, asked to see pictures and ordered repeat labs and the were elevated. I was referred for surgery in 2015 and age 53. This did not cure me and I have been on and off meds for years and now have a 5 mm recurrent tumor. Quite the story! On average it is about 10+ years to diagnose Acromegaly.