Elevated parathyroid hormone (PTH): How is it treated?

Posted by ladybugmg @ladybugmg, Sep 27, 2018

After I had a nonfasting blood test yesterday my doctor tells me that I have elevated PTH. Is anyone else dealing with PTH and if so would appreciate learning about their experience and how it was treated or is untreatable. Thank you for sharing.

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@hopeful33250

@ladybugmg

Yes, I have elevated PTH as well. Here is a link to a Mayo website about elevated PTH, please click on the link to get more information,
https://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/symptoms-causes/syc-20356194
As a result of the PTH being elevated, I also have osteopenia. Do you have bone density problems or kidney stones as well?

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My PTH is341 with osteoporosis chronic kidney disease 3b. No kidney stones. Creatine 1.47
All the RBC WBC etc are low.I went to the site you suggested but I'm really worried about all this. I know contact doc and I will but have you heard of pth this high

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@debs4246

My PTH is341 with osteoporosis chronic kidney disease 3b. No kidney stones. Creatine 1.47
All the RBC WBC etc are low.I went to the site you suggested but I'm really worried about all this. I know contact doc and I will but have you heard of pth this high

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Hello @debs4246 and welcome to Mayo Clinic Connect. I can understand your concern about the high PTH numbers as well as some of the other lab reports that are low. However, I am not a medical professional. Mayo Connect is a patient support forum where we support each other but cannot offer medical advice or opinions.
I'm wondering how long you have had these high PTH numbers. Several years or just recently?

I would highly recommend that you to get a referral to an endocrinologist. This is the type of specialist who can help sort out these issues. Are you currently seeing an endocrinologist?

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@debs4246

My PTH is341 with osteoporosis chronic kidney disease 3b. No kidney stones. Creatine 1.47
All the RBC WBC etc are low.I went to the site you suggested but I'm really worried about all this. I know contact doc and I will but have you heard of pth this high

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My wife's pth was 213, 191. She had 3 glands removed that were bad, her surgeon here in Milwaukee was only going to take out the 1 bad one they could see and not check all 4. We went to Tampa Florida to the Norman center and they checked all 4 and removed 3 bad ones. easy surgery, 6 hrs in hospital and then back in the hotel room. Her pth dropped like a rock and now is normal. We had a great time in Tampa! These people are top notch surgeons. Don't wait any longer.

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I had the nuclear test a year ago and they said that all for were fine. I have a call into my kidney doc cuz it keeps going up. She has been increasing vitamin d with no results. Thank you so much for the answer. How is she doing now?

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@riflemanz64

My wife's pth was 213, 191. She had 3 glands removed that were bad, her surgeon here in Milwaukee was only going to take out the 1 bad one they could see and not check all 4. We went to Tampa Florida to the Norman center and they checked all 4 and removed 3 bad ones. easy surgery, 6 hrs in hospital and then back in the hotel room. Her pth dropped like a rock and now is normal. We had a great time in Tampa! These people are top notch surgeons. Don't wait any longer.

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Oh how did they determine they were bad?

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@hopeful33250

Hello @debs4246 and welcome to Mayo Clinic Connect. I can understand your concern about the high PTH numbers as well as some of the other lab reports that are low. However, I am not a medical professional. Mayo Connect is a patient support forum where we support each other but cannot offer medical advice or opinions.
I'm wondering how long you have had these high PTH numbers. Several years or just recently?

I would highly recommend that you to get a referral to an endocrinologist. This is the type of specialist who can help sort out these issues. Are you currently seeing an endocrinologist?

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Not seeing end
Do finally I at as it appeared to be all due to my kidneys and I do see a kidney doc. Its been above the ok mark for a year but has been jumping slot the past four months.thank you I will talk to all my docs and as you said might be time to add another. Than you

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@debs4246

Oh how did they determine they were bad?

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They check all 4 during surgery to see if there bad. They take pics of each tumor they take out.

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@riflemanz64

They check all 4 during surgery to see if there bad. They take pics of each tumor they take out.

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I went to the site in Florida and watched and listened to the video and now understand now I need to find someone be near me there is no way I would of be able to travel to Tampa. I will show that video to my doc. Thank you so much

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These scans they do aren’t very accurate because they told my wife she only had 1 tumor but she ended up having 3 tumors. That’s why the surgeon needs to check all 4 glands during surgery to be cured.

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