Hello, I recently discovered this forum. For what it’s worth sending sympathy and empathy. I’ve been stuck on Predinsone for nearly 3 years. Its side effects are frightening and as is having rare illness not understood. I can only offer this- Medical Cannabis, especially whole plant Rick Simpson Oil, helps with vast amounts of Drug Side Effects AND helps heal far too many symptoms and illnesses to list here ! If desperate and we all mostly are to be here posting I believe, try researching it on your path to manage your health. G-d bless you and everyone struggling. Hope this reply helps at all, at least knowing you are not alone.