1. < Ear, Nose & Throat (ENT)

Facial Pain - Empty Nose Syndrome

Posted by Bellatrac @bellatrac, Nov 9, 2011

Looking to discuss coping mechanisms/treatment options for atypical facial pain/empty nose syndrome - mine is a result of sinus surgery

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@seekinginfo | @nrd1 | Sep 4, 2023
In reply to @julo43 "No need to educate me. I am surviving. Please focus on how your participation helps or..." + (show)
@julo43

No need to educate me. I am surviving. Please focus on how your participation helps or hinders the group. Negative criticism of those trying to assist squelches participation.

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@julo43

My sincere apologies. It was truly not meant to come across that way nor, towards you. So I hope you can forgive the way it came across.

My frustration lies more within the medical community as I do believe they throw many things at patients, especially after surgeries that have also not been explained thoroughly.

I like you, was sent to a specialty pharmacy after being told I had “inflammation”.

When I showed up to pick up my compounded medication, the pharmacist said “well whom ever prescribed this to you must think you have a really bad infection because this is some strong stuff”.

I then left and had to call my ENT and ask him what exactly this was and what he was prescribing it for if he simply thought I had “inflammation”.

I share your frustration and I hope you can get some healing soon.

REPLY
julo43 | @julo43 | Sep 4, 2023

Thank you so very much for your apology. I appreciate it so very much.

I have seen much negativity on ENS boards, so I may have been overly sensitive to your comment.

Thanks again for your follow up message. Have a great day & best wishes for answers and help.

REPLY
303wendy | @303wendy | Sep 4, 2023
In reply to @julo43 "It is a rx compounded capsule that I mix with distilled water. Originally the plan was..." + (show)
@julo43

It is a rx compounded capsule that I mix with distilled water. Originally the plan was to deliver the liquid via nebulizer, but my airflow is so disrupted that I was unable to successfully inhale the mist, so I spray it into my nose from a bottle.
I checked the bottle for the name of the med and here is what it says “NN GENT 20 MG BUD 0.6 MG AMP B 10 MG”
Tbh I don’t know what those things are. Maybe it will make sense to you.

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Maybe AMP B is Amphotericin B?

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