← Return to Endometrial stromal sarcoma (ESS): What treatment did you get?

Discussion

Endometrial stromal sarcoma (ESS): What treatment did you get?

Gynecologic Cancers | Last Active: Sep 10 9:55pm | Replies (68)
Comment receiving replies
@pn1998

I have back pain with gas pressure on the left side in the middle of the night for the past 3 years. After being told to eat more fiber and drink more water during that time, I was finally referred to a GI nurse practitioner. By that time I felt a nodule in the lower right groin. A sonogram was performed and a mass in my uterus was found.

A full hysterectomy was completed Memorial Weekend 2023. I’m halfway through chemo and then will have radiation. My pathology report post surgery came back with high density endometrial stromal sarcoma.

Jump to this post

Replies to "I have back pain with gas pressure on the left side in the middle of the..."
Helen, Volunteer Mentor | @naturegirl5 | Sep 4, 2023

@pn1998 The delay you experienced in getting an accurate diagnosis is heartbreaking. How many more cycles of chemotherapy will you have before you start radiation? Are you able to get emotional support from family and friends?

There is a Mayo Clinic Gynecological Cancer Support Group that meets on Zoom monthly on the 2nd Monday every month from 5:30 to 6:30 p.m. Eastern time. The next meeting will be on September 11. It is moderated by a Mayo Clinic oncology social worker and you are very welcome to attend. Might this be something that interests you?

Here is the link:
https://connect.mayoclinic.org/event/gynecologic-cancer-support-group-women-of-s-teal/

VIEW AND REPLY