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Pituitary tumor symptoms: joint, muscle and body aches

Neuroendocrine Tumors (NETs) | Last Active: Jul 18 1:10pm | Replies (146)
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@bhampton1962

I too had a pituitary tumor diagnosed about 10 years ago and thought to be prolactin secreting. I had a great deal of pain and stiffness and eventually saw an endocrinologist who did additional testing and diagnosed me with Acromegaly. This is a rare disorder but make sure you have proper testing as it can cause lots of health issues!

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Replies to "I too had a pituitary tumor diagnosed about 10 years ago and thought to be prolactin..."
Teresa, Volunteer Mentor | @hopeful33250 | Sep 6, 2023

Hello @bhampton1962 and welcome to Mayo Clinic Connect. Often when a person has a rare diagnosis such as this it takes a long time before the diagnosis is made. As Acromegaly is certainly a rare diagnosis and I wonder if you could share a little about your journey finding the correct diagnosis. For example, how long did it take before you got the correct diagnosis? What other symptoms, besides the pain and stiffness, led to this diagnosis?

I hope that you are feeling better now and have some symptom relief. What type of treatment has helped with your symptoms?

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