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Just diagnosed with pancreatic NET stage 1
Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)Comment receiving replies
Hi there. I hope you are keeping well. I also have a NET in the tail of my pancreas. It is 1.7 cm. My NET Doctor is telling me it is too risky or hard to do a biopsy in the tail but I see you were able to have one done. Did they ever tell you it was quite risky or does it seem like common practicee? This “risky” comment was feedback from the NET oncologist. What type of doctor is the one who performs the biopsy? Thank you so much .
Replies to "Hi there. I hope you are keeping well. I also have a NET in the tail..."
An MRI found a 1.7 tumor in the trail of my pancreas. My doctor immediately sent me for a fine needle endoscopic biopsy. Pathology confirmed that the tumor expressed chromogranin. Dota petscan confirmed a PNET. Wait and watch for one year.... No change, but i opted for a distal pancreatomy saving the spleen. Two months post surgery, I'm doing pretty well. I'm 65. I wanted the surgery while i was still relatively fit instead of waiting... I'm happy to chat with you about my experience of your like to contact me, but my case was pretty straight forward and I've been lucky so far. I think people need to hear the good stories as well as the challenging ones. 🙏 This cancer can be treated. And you're not alone on the journey.
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My biopsy was done by a Gastroenterology doctor. It showed Grade 2 NET. Then I had a Ga Dotatate PET scan and Less than a month later I had surgery by a HPB ( hepatobilliary sutgeon).