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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 1 day ago | Replies (865)

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@katie2023

I was found to have two very rare Uterine Sarcomas with B-HCG marker: leiomyosarcoma (1 in 100,000) and Endometrial Stromal Sarcoma (1 in a million). Lucky me. I’ve done surgery, it came back or never fully gone as my HCG never gone back to normal. PET showed it’s all over “residues” as it was found in nodes after biopsy from Hysterectomy. I’m now looking into the 9 common things people with radical remission have done and the “breathing 42 mins before sunrise” has really reversed my lung deterioration symptoms as it started to itch/cough and I have to sleep seared. I am also using the music and spiritual cleansing or meditation techniques too. I’ll be venturing on alternative meditation or repurposing drugs through Care Oncology promoted in Jane Mclelland’s book on How to Starve your Cancer. All the meanwhile, I’m waiting for more lab results (Next Generation Sequencing) and for UCSF to give me a second opinion. I’m about to explore Mayo Clinic and Sloan Kettering too but not sure how significant their opinions be for these very rare types of cancer. Anyone have advice on using any other place for second opinion or experience with this type of cancer?

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Replies to "I was found to have two very rare Uterine Sarcomas with B-HCG marker: leiomyosarcoma (1 in..."

Hi @katie2023, you may be interested in joining this discussion:
- Endometrial stromal sarcoma (ESS): What treatment did you get?
https://connect.mayoclinic.org/discussion/ess-cancer/
And exploring the discussions related to leiomyosarcoma https://connect.mayoclinic.org/search/discussions/?search=leiomyosarcoma+

If you would like to request a second opinion with Mayo Clinic experts, you can get started here: http://mayocl.in/1mtmR63