Anyone else have a crazy list of symptoms and no diagnosis?

@moonlighthouse. Seems like you’re having a very difficult time. Do you have a free clinic in your town? You’ve probably already seen doctors there, but did they suggest a referral to any specialists? A comprehensive medical center or university hospital are excellent places to start you journey. But so your homework first. Talk with groups that help the uninsured to find out where you can be seen. In my town there are 3 or 4 organizations that operate food banks and counseling centers. Find one in your area, they can advise you on what to do. You are sick and need professional and proper care.
Can you make some phone calls tomorrow and let me know what you learn? I really want to know

I do okay most of the time, it is just getting annoying. I think there is a free clinic here and I’ve been wanting to register as a patient, but just never seem to get around to it. I am afraid they will put me on prescriptions forever, when if I just stayed on the diet or close to it, I probably wouldn’t have a problem. It’s just the worst though, you can’t have dairy, grains, legumes, nuts, seeds, nightshade vegetables, seasonings made from any of those things, tropical fruits, not to mention caffeine or alcohol but those two mess me up so bad I avoid them anyway. I did see a doctor, but he did not have anything helpful to suggest. I got no follow up call or anything from him.

Did they do a thyroid ultrasound? Thyroid numbers can be normal but nodules can really mess with you. I suffered with many symptoms (some same as yours) I had nodules but normal numbers. Thyroid Meds made a world of difference. Also has your parathyroid (PTH) Been checked? 🙏

No they didn’t do either of those, thank you for that!

Hi just opened Mayo and read your input and needed your info asap. May I ask what symptoms you have? I have nodules and a high TSH , I’m getting a thyroid up take nuclear test next week ; but so curious your symptoms. I’ve myriad structural problems but also have not felt well in such a long time. I also had a nodule removed from my Parathyroid in 2014. My old PC was doing nothing so I left for a specialist and she recommended many labs and this test. Thanks for your time

I had a major surgery then C-vax back to back. Afterward I would feel like I had a temperature, like the flu coming on/bodyaches/ muscle and arthritis pain/ had a trigger finger/my neck hurt/couldn't swallow certain shaped pills(round/uncoated) felt like I was chocking when I bent over/extreme fatigue/rash/sweating/palpitations/unexplained weight gain
Went on Unithroid and it made me swell terrible. Now on NP Thyroid and doing really well. Now down 17 lbs. Been gardening/canning/painted my interior and more /palpitations gone/trigger point gone/overall aches & pains subsided. I d8d feel a little emotional when I first started the meds but that went away in about 10 days. Hope this helps.

It may be worth referral to Rheumatology to test for Sjogren's Disease, formerly Sjogren's "Syndrome," if issues persist. PC Drs. will not usually think of that as a possible. It's one of the most common autoimmune diseases, is systemic and can affect any part of the body. Autonomic Nervous System Dysfunction, insufficiencies & other autoimmune disorders often co-occur with Sjogren's. After a decade of picking up multiple weird new symptoms & negative autoimmune antibody tests, lip biopsy confirmed it in my case. Sjogren's mimics many things, especially other autoimmune disorders. Sjogren's patients struggle with a multitude of cycling issues similar to yours for years before Drs. connect the dots & diagnosis. It's not only dry eye & dry mouth referred to as "sicca syndrome" as is still mistakenly thought of by some in the medical profession. Some people don't even have sicca, but many worse problems. Could be many things in your case. But that was my diagnosis & I noted the familiar experiences. Hope things improve for you soon. BTW, green tea causes me terrible headaches.

Thank you, that is very interesting! I have been thirsty for the last 15 years, I always have to have water with me or I’m miserable. 🤷‍♀️

@moonlighthouse Your health is very important. Please try to go to a clinic as soon as you can. Because 1 doctor brushed you off doesn’t mean all of them will. And yes, they may put you on prescriptions forever, but isn’t your health important? It probably is or you wouldn't have been concerned enough to ask for help. Everyone here wants what’s best for you.

Hey, I got you! LOL! I have so many problems with Drs, and problems left untreated, that my friends tell me I could write a book. 😉