My kappa free light chain was 2.54...the normal. .33-1.94...I also have fatty liver which they do not know if that is the reason for the elevation...I also have an auto immune disease when also might be the reason...sometimes doctors just cant find the reason....

Hello Donna. I very much agree with the suggestion that you seek the counsel of a good hematologist who is very experienced in treating multiple myeloma. We MGUS patients will hopefully never need to worry about MM treatment because for most, the MGUS never progresses that far. Regardless, I find that PCPs rarely know much about it but hopefully know enough to refer you to a specialist. Be insistent about that.

Qualified oncology/hematology doctors are in great demand. It took me quite a bit of time to get into one. I did not get to see my first choice, but I have been well satisfied with the care that I have received from a hem/onc doc with whom I was not familiar. If you get a good one, you will know because they will be so excited about all the advances that have been made, and the treatment of multiple myeloma over the last decade. I have to remind mine that we have talked about this before because he gleefully pulls up all the latest research when I go in. Such a science nerd. I love him.
One of the things that was helpful to me so that I don’t get bogged down in all the numbers in my lab reports is to ask the question, “at what point would you consider doing something besides watch and wait?” it helped me to know his thinking about when he would want additional information and maybe I should start worrying then and not now.
We all go to Dr. Google and his glass is half empty, for sure. So all of that data is in the back of our minds and that’s no place to live your life. I try to live each day fully and enjoy it. I don’t know exactly what’s going to happen in the next six months or six weeks or even six days. I do know that the flowers in my garden are gorgeous this summer, I have trips to look forward to and fun things to do with friends and that sweet, sweet husband of mine.

Life is good.
Keep the faith in the science. It is working for us.
Patty

My kappa lambda ratio is 3.36. I was diagnosed with MGUS after chasing a diagnosis for three years. My symptoms have been mild, some swollen joints in my fingers which the doctor say are chilblains. They are not particularly painful, but are concerning to me. I also have a high rheumatoid factor.

I believe that the MGUS may be connected to the Covid vaccines I’ve had. I am pro-vaccine and have had all the Covid vaccines offered including the boosters.

There are articles that have found a correlation between chilblains and Covid vaccines. I am hoping that what I have will either resolve itself or be minor and not worsen.

Since I am a new user, it won’t let me post the links, but I will later. A simple Google search will show them.