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Kappa light chain is elevated: Anyone dealing with this?

Blood Cancers & Disorders | Last Active: Mar 23 6:45pm | Replies (44)
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@raye

Hello friends,
First I’ll connect to your discussion then ask a very different question. I have IgM kappa MGUS. My hematologist always likes to see how the kappa is doing and it’s been elevated but fairly stable so far, with normal kappa lambda ratio.

Now for a completely different subject. MGUS was diagnosed in 2015. The following year I had the first experience with a
Migraine Aura without headache. I’ve never had any headache. My question to other MGUS, or related Dx, folks is whether you may have experienced the optical effects of these so-called silent auras. Keeping track, I’ve had about 20 of them since 2016.

I’m posing this question because I’m wondering whether there may be any connection between MGUS and Migraine Aura. Who better to ask than our kind group? Looking forward to hearing from you, as well as any suggestions which may come to mind! Thank you! ~~~Raye

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Replies to "Hello friends, First I’ll connect to your discussion then ask a very different question. I have..."
Patty, Volunteer Mentor | @pmm | Sep 4, 2023

Hello Raye,
I am one of those fortunate humans who is not burdened by headaches at all so I am poorly informed, but that is not something I experience with my MGUS.
What does your hematologist say? I am interested in how the symptom dots sometimes connect back to the MGUS dx. But sometimes they don’t as well. Regardless, I’m so sorry. Migraines must be awful.
Patty

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connectingdots | @connectingdots | Mar 22 10:26pm

I was diagnosed with MGUS recently based on an elevated kappa lambda ratio and elevated kappa free light chains. I had pain-free migraine auras twice in the last year or so, and I’ve never had them before. I went to a hematologist oncologist, finally after more than three years, and was diagnosed. The doctor said I have a low risk of developing multiple myeloma.

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