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Anyone still have pancreas pain while taking Lanteotide?
Neuroendocrine Tumors (NETs) | Last Active: Sep 20, 2023 | Replies (18)Comment receiving replies
I have metastasis liver net with unknown primary they believe it is in my gut
I did 3 Lanreotide injections they made me sooo sick I stopped and started Octreotide injections I was on for the first 3 months and then it slowly creeped up until I was sooo sick I had to stop
And they weren’t stopping my tumors from growing or new ones from presenting themselves
I am back to my old self now after I suffered for a year
Maybe your body can’t tolerate them as well
Good luck
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I took lanreotide injections for a year and the side effects for me were worse than the cancer symptoms so I chose to stop. I still have diarrhea a lot of the time but have meds to help with that. I had a well differentiated neuroendocrine liver tumor in 2021 & had it removed. I got lucky because they were able to basically scoop it off my liver with very little margin and said they got it all. Meanwhile the primary is in my gut but it’s so small they can’t operate because it would be a fishing expedition and maybe yield no results. So it’s a gallium scan every six months and a wait and see how to treat as it progresses 🤷♀️. Meanwhile I deal with the yuky side effects of cancer but I’m alive and get to enjoy seeing my family. Faith plays a major role in my life and has helped me tremendously.