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Dear @hopeful33250
Thank you so much for your guidance and wisdom in dealing with this condition. I spoke with a nurse practitioner at my doctor's office and she said they don't know what I have. The see Parkinsonism. The neurologist at the same office felt like it was more Parkinson's disease. I was told it could take years to figure out.
As for local support groups, I'll call some of the hospitals in my area and hopefully they will be able to help me get connected. I've dealt with diabetes, chronic pain, fibromyalgia, chronic fatigue, thyroid problems, and mental health issues. But this condition has kicked my butt. It's baffling, miserable, and impacts your emotional health.
I truly hope that whatever you are dealing with, your doctors have found a good treatment that works.
All The Best,
Colleen L
Replies to "Dear @hopeful33250 Thank you so much for your guidance and wisdom in dealing with this condition...."
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Hello @colleenl2008,
When I first started with neurological symptoms, it was hard to diagnose as well. The doctors kept ruling out other possible causes. I recall one doctor saying that this might not be diagnosed until it got worse. That was not a comforting thought. It took over 15 years to get a Parkinson's diagnosis. Like you, I'm now at an age where I have to deal with several chronic health issues. I understand that it is difficult.
Here is a link to the Davis Phinney Foundation, a leader in PD research and education. https://davisphinneyfoundation.org/about/
They have many helpful webinars to watch, many of these webinars are taught by medical professionals, who often have PD themselves. I think you will find this website very useful. If you sign up to receive email newsletters, you can get great information.